When we met with Alex and Jamie Silver, we learned about the life-saving work that EBRP is funding, and we knew that our commitment would go a long way to make a real difference in the lives of people living with this terrible condition.
It is hard to find a stronger partner in the fight to cure EB than the Deshe family, and we welcome the tremendous support of Ari, Ann, Elie, David, Dara and Daniel," said Alex Silver, Chairman of EBRP.
Members of the Deshe family will join the Board of Directors of the EBRP to help advance the foundation's mission to back the most promising scientific research around the world.
As a combined organization, EBRP can command the scale to fund aggressive research and accelerate a cure for EB," commented Alex Silver, Chairman of EBRP.
Kicking off an initial push towards their $5 million fundraising goal, EBRP is teaming up with Microsoft during the month of October during the Microsoft Employee Giving Campaign, including a grassroots movement "Heal EB: Cause the Wave" to raise awareness about EB and create a ripple effect of support.