A frequency count of merged scores of 1, 2, and 3 on I-QOL and SPI-QOL items that participants felt were "a problem" for affected individuals are reported in Figure 2.
Top problematic I-QOL items based on a similar rank order of proportions of ratings (1 to 3) by affected individuals, and support persons indicated no personal control over bladder, worries about wetting oneself, hard time getting a good night of sleep, worries about not getting to the toilet in time, and frequent trips to the bathroom.
SPI-QOL is a new tool for support persons that we adapted from the well-known and reliable I-QOL initially developed for use with affected individuals.
Affected individual and support person mean ratings indicated that affected individuals' total I-QOL and avoidance/limiting behavior, social embarrassment, and psychosocial impact domains were moderately impacted by UI (i.
Our hypothesis aimed to test whether agreement between individuals affected by UI and their support persons existed on the I-QOL and the SPI-QOL tool.
Of clinical importance, top-ranked problematic I-QOL items (based on a items that had a similar rank order of moderate to high proportions of affected individuals and support persons who rated I-QOL items from 1 to 3) included the lack of personal control over bladder continence, worries about wetting oneself, having a hard time getting a good night of sleep, worries about not getting to the toilet in time, and having to make frequent trips to the bathroom.
The I-QOL contains 22 items, each with a 5-point Likert-type response scale, yielding a total score and three subscale scores (avoidance behavior, psychosocial impact, and social embarrassment).
We used the intraclass correlation coefficient (ICC) to assess item-specific test-retest reliability of the I-QOL.
Table 1 shows demographic and clinical data of patients and the averages of the total scores and subscores of the Turkish-language I-QOL.
We calculated the total mean I-QOL score and ICC of all subscores of I-QOL as 0.
In our study, we concluded that the Turkish-language I-QOL is internally consistent and reliable in patients with MS.
It is very important that the I-QOL is used to determine the changes in patients' QOL arising from urinary incontinence and that the obtained data is used to help patients return to a normal social environment.