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Giovanni and Ginnina are both afflicted with Usher syndrome, a congenital condition that impairs hearing and will slowly rob them of their sight. She discovered that she had Usher syndrome, a genetic condition combining hearing loss and Retinitis Pigmentosa (RP), a major cause of deaf-blindness. Gund is co-founder of The Foundation Fighting Blindness, a non for profit organization driving research to find causes, treatments and cures for retinitis pigmentosa, macular degeneration, Usher Syndrome, and other retinal degenerative diseases. |
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