EURORDIS

Acronym	Definition
EURORDIS	European Organisation for Rare Diseases

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(65.) EURORDIS. Breaking the access deadlock to leave no one behind.

Moving Towards Accountability for Reasonableness--A Systematic Exploration of the Features of Legitimate Healthcare Coverage Decision-Making Processes Using Rare Diseases and Regenerative Therapies as a Case Study

Nominations for the EURORDIS Scientific Award came from the public, with members of the rare disease community and beyond then having their say on who should get the top accolade.

Scientist wins honour for her research

European Organisation for Rare Diseases (EURORDIS France) Available at http://www.eurordis.org/IMG/pdf/voice_12000_patients/EURORDISCARE_FULLBOOKr.pdf

La aplicacion del principio de subsidiariedad en el empoderamiento de los pacientes para el cuidado de la salud: el caso de las enfermedades raras en Argentina

Last year, NORD signed a "Memorandum of Understanding" with its counterpart in Europe, an organization known as EURORDIS. The two organizations work together on various educational and advocacy initiatives.

Families seek a greater role in search for rare disease treatments: the National Organization for Rare Disorders (NORD) believes that patients and families of patients with rare disorders and chronic conditions belong to a highly-motivated population who can help drive the search for safe, effective treatments

Because malaria is not a public health priority in the industrialized countries, the market is seen as unprofitable and the disease has been classified as a 'neglected disease' (Eurordis 2005; Haffner et al.

Ajuga remota benth.: from ethnopharmacology to phytomedical perspective in the treatment of malaria

La falta de conocimientos cientificos ha impedido el desarrollo terapeutico en todos los niveles: medico, educativo, psicologico y logopedico (Eurordis, 2002).

Sindrome Williams: una enfermedad rara con sintomatologia contradictoria

For example, the European Rare Diseases Organisation EURORDIS hosted a European colloquium on the theme of rare diseases and health inequalities.

HEALTH : EUROPE MARKS RARE DISEASE DAY

For example, the European Rare Diseases Organisation EURORDIS will host a European colloquium on the theme of rare diseases and health inequalities.

HEALTH : EUROPE MARKS RARE DISEASE DAY

De acordo com a definicao da EURORDIS (A voz dos pacientes de doencas raras na Europa.

Is "associativism" good for one's health? The case of rare diseases/O Associativismo faz bem a saude? O caso das doencas raras

The non-profit organisation known as EURORDIS spoke on behalf of some 700 rare disease patient organisations and urged the industry to act.