EURORDIS

AcronymDefinition
EURORDISEuropean Organisation for Rare Diseases
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Rare Connect is an online social network managed by communities of patients with rare diseases created in 2010 alongside EURORDIS, the European Network of Rare Diseases, and the National Organization for Rare Disorders (NORD).
Communication strategies employed by rare disease patient organizations in Spain
Nominations for the EURORDIS Scientific Award came from the public, with members of the rare disease community and beyond then having their say on who should get the top accolade.
Scientist wins honour for her research
EURORDIS launched Rare Disease Day in Europe in 2008.
Families seek a greater role in search for rare disease treatments: the National Organization for Rare Disorders (NORD) believes that patients and families of patients with rare disorders and chronic conditions belong to a highly-motivated population who can help drive the search for safe, effective treatments
The European Medicines Agency recommended 18 orphan drugs in 2015 -- but just four in 2011 -- and EURORDIS is urging more to be done about finding treatments for rare diseases.
Pharma industry urged to lower rare disease drug prices
RareConnect was created by EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders) to provide a safe space where individuals and families affected by rare diseases can connect with each other, share vital experiences, and find helpful information and resources.
LTC Supports Online Community RareConnect in Multiple Languages
EURORDIS Chief Executive Officer Yann Le Cam said, “RareConnect brings together rare disease patients in a collaborative way, across borders.
RareConnect Announces 40th Rare Disease Community
M2 EQUITYBITES-February 28, 2013-Genzyme is recipient of EURORDIS Company Award in the field of rare diseases(C)2013 M2 COMMUNICATIONS http://www.
Genzyme is recipient of EURORDIS Company Award in the field of rare diseases
M2 PHARMA-February 28, 2013-Genzyme is recipient of EURORDIS Company Award in the field of rare diseases(C)2013 M2 COMMUNICATIONS
Genzyme is recipient of EURORDIS Company Award in the field of rare diseases
EURORDIS also stressed the vital need to raise public awareness about the specific problems encountered by these sufferers and their families and friends, and to seek suitable funding for fundamental research.
PUBLIC HEALTH: REPORT SCATHING ABOUT POOR TREATMENT FOR RARE DISEASES
EDRIC is a member of EURORDIS, the European rare Diseases ORganisation and has its own moderated forum on RareConnect, run by EURORDIS at http://www.
European Limb Loss Day 2012: Paralympics Celebrated Athletes with Limb Difference But More Must be Done to Improve Lives of Everyone with Limb Loss
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