(65.)
EURORDIS. Breaking the access deadlock to leave no one behind.
Nominations for the
EURORDIS Scientific Award came from the public, with members of the rare disease community and beyond then having their say on who should get the top accolade.
European Organisation for Rare Diseases (
EURORDIS France) Available at http://www.eurordis.org/IMG/pdf/voice_12000_patients/EURORDISCARE_FULLBOOKr.pdf
Last year, NORD signed a "Memorandum of Understanding" with its counterpart in Europe, an organization known as
EURORDIS. The two organizations work together on various educational and advocacy initiatives.
Because malaria is not a public health priority in the industrialized countries, the market is seen as unprofitable and the disease has been classified as a 'neglected disease' (
Eurordis 2005; Haffner et al.
La falta de conocimientos cientificos ha impedido el desarrollo terapeutico en todos los niveles: medico, educativo, psicologico y logopedico (
Eurordis, 2002).
For example, the European Rare Diseases Organisation
EURORDIS hosted a European colloquium on the theme of rare diseases and health inequalities.
For example, the European Rare Diseases Organisation
EURORDIS will host a European colloquium on the theme of rare diseases and health inequalities.
De acordo com a definicao da
EURORDIS (A voz dos pacientes de doencas raras na Europa.
The non-profit organisation known as
EURORDIS spoke on behalf of some 700 rare disease patient organisations and urged the industry to act.