EURORDIS

AcronymDefinition
EURORDISEuropean Organisation for Rare Diseases
References in periodicals archive ?
(65.) EURORDIS. Breaking the access deadlock to leave no one behind.
Moving Towards Accountability for Reasonableness--A Systematic Exploration of the Features of Legitimate Healthcare Coverage Decision-Making Processes Using Rare Diseases and Regenerative Therapies as a Case Study
Nominations for the EURORDIS Scientific Award came from the public, with members of the rare disease community and beyond then having their say on who should get the top accolade.
Scientist wins honour for her research
European Organisation for Rare Diseases (EURORDIS France) Available at http://www.eurordis.org/IMG/pdf/voice_12000_patients/EURORDISCARE_FULLBOOKr.pdf
La aplicacion del principio de subsidiariedad en el empoderamiento de los pacientes para el cuidado de la salud: el caso de las enfermedades raras en Argentina
Last year, NORD signed a "Memorandum of Understanding" with its counterpart in Europe, an organization known as EURORDIS. The two organizations work together on various educational and advocacy initiatives.
Families seek a greater role in search for rare disease treatments: the National Organization for Rare Disorders (NORD) believes that patients and families of patients with rare disorders and chronic conditions belong to a highly-motivated population who can help drive the search for safe, effective treatments
Because malaria is not a public health priority in the industrialized countries, the market is seen as unprofitable and the disease has been classified as a 'neglected disease' (Eurordis 2005; Haffner et al.
Ajuga remota benth.: from ethnopharmacology to phytomedical perspective in the treatment of malaria
La falta de conocimientos cientificos ha impedido el desarrollo terapeutico en todos los niveles: medico, educativo, psicologico y logopedico (Eurordis, 2002).
Sindrome Williams: una enfermedad rara con sintomatologia contradictoria
For example, the European Rare Diseases Organisation EURORDIS hosted a European colloquium on the theme of rare diseases and health inequalities.
HEALTH : EUROPE MARKS RARE DISEASE DAY
For example, the European Rare Diseases Organisation EURORDIS will host a European colloquium on the theme of rare diseases and health inequalities.
HEALTH : EUROPE MARKS RARE DISEASE DAY
De acordo com a definicao da EURORDIS (A voz dos pacientes de doencas raras na Europa.
Is "associativism" good for one's health? The case of rare diseases/O Associativismo faz bem a saude? O caso das doencas raras
The non-profit organisation known as EURORDIS spoke on behalf of some 700 rare disease patient organisations and urged the industry to act.
Pharma industry urged to lower rare disease drug prices
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