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Our FAScinating Journey addresses the challenges that a child and their family faces when they are diagnosed with Fetal Alcohol Spectrum Disorder (FASD).
"The brains of individuals with FASDs showed evidence of altered nerve fiber integrity at a microstructural level, even though total brain size was statistically equivalent between alcohol-exposed and comparison participants," said Fryer.
Accused suffering from FASD, Aboriginal persons with FASD in particular, represent just such a context.
FASDs are also the most undiagnosed/misdiagnosed developmental disability of our time.
CDC has developed new materials that can guide in the identification, prevention, and management of FASDs. These products include a curriculum development guide for use with health-care students and practitioners and recommendations from the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect on promoting and improving strategies to 1) reduce alcohol use and alcohol-exposed pregnancies and 2) improve early identification, diagnostic services, and research on interventions for children with FASDs and their families.
Teaming up to educate and make a difference in the world, Liz and Jodee include a list of Primary Disabilities and Secondary Disabilities so others can better understand the multiple challenges a person with FASD's faces.
Data was collected from FASD patients and a group of 21 healthy volunteers.
After the AAP released its guidelines on fetal alcohol spectrum disorder (FASD) in 2015, some pediatricians asked for further guidance on how to care for patients with FASD within the medical home, as many had a knowledge gap on how to best manage these patients.
Turchi and her colleagues released the FASD clinical report with "strategies to support families who are interacting with early intervention services, the educational system, the behavioral and/or mental health system, other community resources, and the transition to adult-oriented heath care systems when appropriate." They noted the prevalence of FASD is increasing, with 1 in 10 pregnant women using alcohol within the past 30 days and 1 in 33 pregnant women reporting binge drinking in the past 30 days.
According to the report, pediatricians should understand the epidemiology and prevalence of FASDs. To optimize screening and monitoring of children, pediatricians should collaborate and communicate with obstetric providers with respect to prenatal alcohol exposure and risk factors.
The challenges I have faced in these roles are many, but they pale in comparison to the challenges I face as the parent of a child with fetal alcohol spectrum disorder (FASD).
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