FIGISFisheries Global Information System (Food and Agriculture Organization of the UN)
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Because Colorado has a comprehensive medical marijuana program, Figi can legally purchase CBD products.
I filled out the order form and stuffed it in the Figis reply envelope, only to be faced with a "place stamp here" box.
"We did vitamins, acupuncture, gluten-free, dairy-free, keto, all raw and organic," Figi says.
During the hundreds of hours Figi spent researching Dravet syndrome, she came across studies from Israel and Europe that showed that CBD worked as an anticonvulsant and could possibly keep Charlotte's seizures at bay.
After 18 months, Figi stepped forward to announce that her daughter was free of seizures and no longer taking any medication aside from CBD.
Following Paige Figi's advocacy, several red-state legislatures legalized CBD while leaving marijuana itself and other cannabinoids illegal.
Like Paige Figi, Cotte has become a sherpa for parents of children with rare diseases.
But until such legislation goes into effect, the only CBD formulation considered legal by the DEA is Epidiolex, an oral spray that the FDA approved in June 2018 for the treatment of Dravet syndrome, Charlotte Figi's disease, and Lennox-Gastaut syndrome, another rare form of epilepsy.
In the last several years, it has threatened regulatory action against 19 CBD marketers, including the company that grows the strain of cannabis that saved Charlotte Figi's life.
Paige Figi also worries because she expected families like hers would have won the CBD fight by now.
"I get frustrated that this isn't done yet," Figi says.