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The need for intensive monitoring and caregiving at home for children with HLHS means that parents face many challenges, and this often leads to parenting stress, uncertainty, protectiveness, as well as attempts at normalcy (Rempel & Harrison, 2007; Rempel, Harrison, & Williamson, 2009; Sarajuur, Lonnqvist, Schmitt, Almqvist, & Jokinen, 2012; Spijkerboer et al.
The care of these children with HLHS has been continuously improving since the first surgical procedure became available three decades ago, yet cardiac transplantation continues to be the limiting factor for far too many individuals," said Timothy Nelson, MD, PhD, director of the Todd and Karen Wanek Family Program for HLHS in Mayo's Center for Regenerative Medicine.
HLHS is a rare but severe congenital heart defect in which the left ventricle, the chamber of the heart that pumps blood out into the body, does not develop properly.
The recent significant decrease in the birth of babies with HLHS is an example for this situation (14).
An infant with HLHS is in a very critical situation.
HLHS requires surgeries after birth to rebuild the heart, but in previous cases the survival rate was only 2050%, according to the Associated Press (AP).
If you have ever had an ultrasound revealing unwelcome news, you will recognize the unreal feeling Kuebelbeck describes as she and her husband learned that her otherwise perfect baby had HLHS, or hypoplastic left heart syndrome.
There was no significant difference between the CrCl of patients with HLHS versus those with TGA.
HLHS affects approximately 1 in 8,000 children born in the United States).
HLHS consists of a series of cardiac defects including underdeveloped left heart chambers with aortic and mitral valve stenosis (narrowing) and atresia (blockage) and a small ascending aorta.
Children with HLHS have a functioning right ventricle, but have a small left ventricle that can't support the systemic circulation.
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- HLH (Hemophagocytic lymphohistiocytosis)