IFOPAInternational Fibrodysplasia Ossificans Progressiva Association
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The doctor talked about how inspiring she is, and the small business she operates, with the help of her mother, creating and selling greeting cards, stationery and other gifts to raise money for IFOPA.
Most of the money raised through the sale of these items goes back to IFOPA, to the University of Pennsylvania, and to help raise awareness about Jasmin's disorder.
Researchers can access the FOP community through the IFOPA, which offers a patient population needed for research.