IFOPAInternational Fibrodysplasia Ossificans Progressiva Association
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Most of the money raised through the sale of these items goes back to IFOPA, to the University of Pennsylvania, and to help raise awareness about Jasmin's disorder.
The IFOPA works to disseminate information about FOP to doctors, patients, families, and the public.
The IFOPA offers resources and consultation about assistive technology and funding sources through its L.