In their continuing function as a watch dog organization, IPAV has filed a citizen's petition with the Food and Drug Administration's (FDA) Advisory Committee on Vaccines and Related Biological Products asking that a "black box" warning label be printed on the OPV packaging.
IPAV is conducting a letter-writing campaign to the FDA and Congress.
The IPAV parents' appearance before the committee was very important in putting a voice and a face on this problem.
She envisions including various topics relating to VAPP, as well as having IPAV members relate their experiences, circulate their informational literature and parents' fact sheet in educational forums and lectures, like those given by medical professional organizations such as the American Academy of Pediatrics (AAP).
Based on members experiences and findings reported to the CDC that people with immune deficiencies are among those at greater risk of contracting VAPP, IPAV formed a partnership with Immune Deficiency Foundation (IDF) in order to share and use information concerning both diseases effectively.
The AAP appreciates that IPAV is a group which does not want to end vaccinations until polio is eradicated.
Through this and their own efforts, IPAV hopes to continue to keep the spotlight focused on VAPP and inform the public of the risk.
As part of their journey to come to terms with the enormity of their situation, the couple attended the IPAV Family Meeting.