department were also very helpful, I didn't feel there was a barrier there at all."
When considering IPFRs
four key issues are considered: evidence of efficacy, exceptionality, affordability, and ethics."
requests are carefully assessed through the all-Wales Individual Patient Funding Request Panel...
" Irfon was tearful when he learned the outcome of the IPFR
review before he died and although the move by Welsh Labour was too late for him, he knew others would finally benefit from him telling his story.
"We can confirm that in this case, a request was considered and no clinical exceptionality was determined and thus in accordance with the IPFR
policy, the request was refused.
"The health board has an IPFR
panel which meets fortnightly to consider each request on its merits, using clinical evidence available at that time, and the criteria set out within the all-Wales policy.
However, there was more work to be done and we continued campaigning for a review of the IPFR
process so that it would become a fairer, transparent and clearer for individuals and families.
I went home and again read the IPFR
(individual patient funding request) policy and still could not find a reason why the panel didn't find Sarah clinically exceptional."
"As such requests for LVAD's are considered using the Individual Patient Funding Request (IPFR
Welsh patients suffering from all illnesses must apply for health board funding for drugs not available on the NHS through the Individual Patient Funding Request (IPFR
"Although the review panel cannot overturn the original decision, it can ask for that decision to be reconsidered by the IPFR
He also confirmed that a "sharply-focused" independent review would take place into the Individual Patient Funding Request (IPFR
) - a process where health boards apply for medicines that have not been approved as cost-effective.