References in periodicals archive ?
The dental issues are often the biggest challenge for individuals living in the United States who are affected by ectodermal dysplasias, according to NFED Executive Director Mary Fete.
Families at the Conference will also learn about what they can do to help the NFED advocate for federal legislation that will mandate that insurance companies provide health benefits for ectodermal dysplasia, because it's a congenital anomaly.
As of January 1998, nearly 2,000 families from 39 countries were registered with the NFED. In a telephone interview with Mary Kaye Richter, executive director of the NFED, she described ED as "a disorder of inconvenience." She added, "parents fear what they don't understand.
Here at the NFED we are celebrating some remarkable successes.
EDITOR'S NOTE: For more information on ectodermal dysplasias, contact: National Foundation for Ectodermal Dysplasias (NFED), 410 E.
Acronyms browser ?
Full browser ?
- NFE method