NFPTRNational Familial Pancreas Tumor Registry (Johns Hopkins Hospital; Baltimore, MD)
NFPTRNormalised Frog Palate Transport Rate
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The initial case reports and early population-based studies were followed by the establishment of family cancer registries, including the National Familial Pancreas Tumor Registry (NFPTR).
To define accurately the risk of pancreatic cancer in families, we prospectively observed families in the NFPTR. More than 838 kindreds were followed up and the prospective risk of developing pancreatic cancer was calculated by comparing the number of observed new cases of pancreatic cancer with the expected number of cases based on the US population-based Surveillance, Epidemiology, and End Results (SEER) Program data.