In addition to the survey data, we merged our NLTCS
file with several types of individual-level administrative data, including Minimum Data Set (MDS) assessments, Medicare fee-for-service claims, Medicare denominator files, and vital statistics files.
Persons were included in this study if: (1) the NLTCS
sample person was alive in 1991, (2) the sample person died between January 1, 1996 and December 31, 2000, (3) there were 5 years of continuous Medicare records for the individual, and (4) the person was not in Medicare MCOs during the last 5 years of life.
We employed two primary data sources in this modeling effort, the MCBS and the NLTCS
The Survey of Informal Caregivers, part of the 1989 NLTCS
, was designed to obtain information on the amount and kind of care that a caregiver provides to the disabled person living in the community.
While the NLTCS
includes an income variable for each parent, it is not used in this analysis because a) it is missing for 529 people, b) it is bracketed, and c) it measures household income rather than the parent's income.
We specified four mutually exclusive cognition groups: (1) good cognition, with a score of 24 or higher; (2) poor cognition, with a score lower than 24; (3) a proxy was needed to complete the NLTCS
, in which case an MMSE score was not available; and (4) missing data, when an MMSE score was not available and the survey did not indicate use of a proxy respondent.
Expenditure data in the NLTCS
were limited to a time period of one month and may be high or low relative to annual expenditures or episodes of care expenditures for any respondent.
sample was supplemented, after the 1982 survey, by screening for chronic disability a new sample of 5,000 persons who passed age 65 in the interval between two surveys (i.
It would be desirable to further restrict our analysis to children of those elderly with functional limitations associated with long-term care needs, as defined in the NLTCS
Section III presents the theoretical model, and section IV describes the NLTCS
data and discusses its limitations.
To better understand why this occurs, we analyzed patient demographic health-related and system-related factors from the NLTCS
Though well above LSOA estimates for both men and women, they are similar for men and low for women relative to the NLTCS