SPAENScottish Personal Assistant Employers Network (UK)
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Five leading patient groups in Germany, France and the UK are the founding members of SPAEN, and membership of the association is open to patient groups anywhere in Europe who work with sarcoma patients.
SPAEN will organise training to help patient groups understand sarcoma, and advise patients wishing to create new advocacy groups.
SPAEN is being supported by the pan-European collaboration of sarcoma specialist researchers and doctors, Conticanet.