Santhera Pharmaceuticals (SIX: SANN), a Swiss specialty pharmaceutical company that specialises in the development and commercialisation of innovative pharmaceutical products for the treatment of orphan mitochondrial and neuromuscular diseases, announced on Tuesday that Jodi Wolff, PhD, will represent Santhera as a founding member of the United Mitochondrial Disease Foundation (UMDF
) Industry Advisory Council (IAC), with immediate effect.
it also outlines that the new government will have only up to 25 members from NC, CPN-UML, UCPN-M, UMDF
and other smaller parties and will focus on drafting of the constitution.
26, 2010) (stating that 1000 to 4000 children are born with a mitochondrial disease) [hereinafter UMDF
This is a testament to our thousands of dedicated members who urged us to come up with a UMDF
bracelet and worked tirelessly to share them with family, friends, and strangers.
needs an executive with an innovative and strategic vision, strong leadership skills, and the ability to communicate effectively with a variety of people and organizations.
To secure the Madhesh-based parties' support, the UML and the NC had expressed their commitment to implement the agreements signed with the United Democratic Madhesi Front (UMDF
) a recently re-activated alliance of MJF, TMDP and SP.
Sponsored by the United Mitochondrial Disease Foundation (UMDF
), the new registry employs Genetic Alliance's Platform for Engaging Everyone Responsibly (PEER), and is being populated by patients, caregivers and family members who are committed to gathering information about mitochondrial disease to accelerate the development of diagnostic tools, treatments and cures.
4) I suggest that you check into the United Mitochondrial Disease Foundation (UMDF
) for more information.
The United Mitochondrial Disease Foundation (UMDF
), of which I am proud to be a founding member, is the result of those efforts.
For more information about testing for mitochondrial disorders, contact the United Mitochondrial Disease Foundation (UMDF
), PO Box 1151, Monroeville, PA 15146-1151, or call (412)856-1297.