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Kuigi tahenduslikke kohti pole paar viimast polvkonda enam aktiivselt kasutatud (naiteks ravimiseks), teatakse neid ja nendega seotud kombestikku veel praegugi.
Kahjuks suuline traditsioon koiki neid vastuseid ei anna.
Chopo-Kroger will be speaking at the city of Clay council meeting on May 6 when they will consider passing a proclamation that recognizes May 12 as International NEIDs Awareness Day.
A local PANDORA Org representative has also been speaking to Alabama Rotary Clubs, informing them about NEIDs in a presentation titled “The Other Polio.” ME/CFS was referred to as “atypical polio” and “abortive polio” until the 1950s because the symptoms are similar to polio, and ME/CFS also occurs in outbreaks.
Both organizations envisioned creating centers for specialized care for NEIDs patients, because these conditions overlap, have similar symptoms and involve similar pathophysiologies.
NEIDs (NeuroEndocrineImmune diseases) include ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome), fibromyalgia, chemical sensitivities / environmental illness, chronic Lyme disease and Gulf War illnesses.
"The timing of this development could not be better as May is International NEIDs Awareness Month," said Marly Silverman, P.A.N.D.O.R.A., Inc.
The Coalition 4 ME/CFS is extending an open invitation to other NEIDs patient advocacy 501(c)(3) organizations to join.
"A strong and unified voice is crucial to getting a national agenda for ME/CFS and other related NeuroEndocrineImmune Diseases (NEIDs) in place," said Marly Silverman, PANDORA's founder.
The coalition's future efforts will augment the current scientific breakthroughs in the field of NEIDs. The coalition will make sure scientific discoveries translate into a change in public health policy that will improve quality of life and create a better future for patients with ME/CFS and other NEIDs.
"Having a research center- is essential to promoting research into the etiology of, and therapeutic interventions for neuroendocrineimmune disorders (NEIDs)," according to Assembly Resolution (AR) 202 which was sponsored by Assemblyman Upendra Chivukula (D), Deputy Speaker; Assemblyman Herb Conaway, Jr.
"Being placed on the top 200 small charities by grassroots voting is an overwhelming endorsement of the unique concept which underlies P.A.N.D.O.R.A.'s mission: the umbrella of NeuroEndocrineImmune Disorders (NEIDs), which has a commonality of pathophysiology and symptomology resulting in substandard personal, and family quality of life for individuals afflicted with NEIDs," stated Dr.
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- Neiburg, Mariia
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